How Parkinson’s affects communication

If the person you care for has Parkinson’s, you may be
surprised to discover the many ways the disease hampers communication. Voice
problems alone affect 60%-80% of people with this condition. Low volume and
slurred speech may make it hard at times for you to grasp what your loved one
is saying. He or she may be slow to respond. Or words may tumble out very
quickly and somewhat jumbled. Misunderstandings and frustration are common.
Fortunately, both of you can take steps to help offset communication issues.

Facial masking
The face has 43 muscles. Their movement gives us expression. But Parkinson’s restricts facial muscles just as it restricts leg and arm muscles. The result is a stiff or “blank” expression. Typically, such a look indicates anger, boredom, or sadness. But with Parkinson’s, none of that may be true. Ask your relative what he or she is feeling about the topic you are discussing. It may be far from what their nonverbal cues are “telling” you.

To minimize problems:

• Aim for one-on-one
  conversations or small groups
• Choose a quiet room with
  few distractions and sit near each other
• Encourage your loved one to
  take a deep breath before speaking
• Don’t rush. Wait to give
  your relative a chance to respond
• Listen patiently. Pressure
  to perform will make speech more difficult

Try speech therapy and singing
A speech therapist with special Parkinson’s training can provide facial and voice exercises. Ask in particular about an LSVT “Loud” program. Named for the Parkinson’s patient it was designed for, Lee Silverman Voice Treatment helps people recalibrate their impression of what “loud enough” is. The speech therapist may recommend helpful devices such as a portable voice amplifier, or singing as a fun way to practice breath control. Singing in a group also provides an opportunity for socializing, accomplishment, and fun!

Is communication strained?
It can be surprisingly difficult to interact with a loved one who seems stern or uninterested, even when you know it’s the disease. We at Debra Levy Eldercare Associates have experience working with people with Parkinson’s. As the Metro DC experts in family caregiving, we can guide you with tips and referrals to appropriate specialists. Give us a call at 301-593-5285. Let’s start the conversation.